Thursday, August 30, 2012

me: "i love you" him: "thermostat."

Quick update.
So, our son hasn't been eating a lot lately. He's got seasonal allergies like I do, and it kills his appetite. Luckily, I can sneak Zyrtec into his "green juice." His favorite protein used to be morning star farms "chik'n grillers" which are vegetarian gluten bombs. We went against his diet and, two days in a row, gave him a griller as part of his dinner.
Now I really see why they tell you to cut out the gluten. It's like erasing a lot of the interventions we already have done. His behavior is unreal. Bouncing off of the walls, hitting himself, pushing his teachers, not being able to sleep, not being able to talk as much (more squeaking and TONS of delayed echolalia).
No more gluten. no more! I guess Paul and I will have to eat it or give it away.
G's teachers pulled me aside and told me how much his behavior had changed this week and I felt bad. But they also confessed that they'd been giving the other kids goldfish in front of him, and he ended up stealing some from the other kids cups. Casein and gluten.
So, yeah, he's regressed a bit this week. He probably feels like crap, what with the allergies, and GI stuff and that always makes the sensory stuff worse, too.
He DOES, however, (50% of the time) tell us that it's "time to say bye-bye poo poo" when he messes his pull-up. We are using the story "once upon a potty" to potty train him, so we follow the story and the routine really helps. We're still hoping he will tell us when he's wet, but we aren't there yet. We sit him on the potty every day and he NEVER goes pee. He'll hold it until he gets a pull-up.

Most pre-school EI programs want kids his age (even autistic ones) to be potty trained. So we wait. and keep trying.

My commute and the hubby's commute are terrible, so we are thinking about moving back to the area we first moved to in Atlanta.
Everyone says, You move a lot.
Yes, we do. We're renters. We can't buy a house. We are always at the mercy of whatever landlord we have. The likelihood of me ever being a homeowner? ha. forget it. any extra money I get at this point is going to go to my son's therapy with the goal of him being an independent adult one day.
If we do not get this therapy, he will not be. He is socially developmentally delayed. He needs some OT and SLP.
He's gonna be a bit miserable til the gluten is out of his system, a few weeks, probably. We are prepared for melt downs and misery. We will take all of the kisses and hugs we can get.

We hope to make the fundraising goal, but if we don't that's okay, too.
http://igg.me/p/198392?a=991292

I've called the autism daycare and they told me, as they have before, that most kids age out before they ever get in. ugh. We are now at the mercy of the school district.
Waiting lists.
Autism is a friggin epidemic. don't get me started.

I just wanna go hug my son now.



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